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Following Joy: 22

January 11, 2016

Market America WebCenters

Tony and I took Moriah to see the genetics specialist just days after even realizing she may be dealing with a lifelong diagnosis and the challenges that go with it. The doctor noted some of the common features Moriah displayed with the syndrome characteristic traits, but immediately stated that he did not believe she had that named syndrome. He was thorough and kind, passionate about the children he sees and very knowledgeable, THE expert in that syndrome. Before we left, he sent us off with two orders for genetic tests. One would rule out the syndrome with the happy name with 85% reliability and the other would look for other known syndromes and genetic reasons for developmental delays.

I don’t know exactly why, but I sat on those tests for a while. Just knowing she didn’t have the one syndrome felt like enough for me. And I don’t remember what finally spurred me to take her to get more blood drawn. She had been through so much in such a short time.

Oh yes, I remember now. The new adoption agency was helping us set up the next adoption after the first fell through, and they were asking for so many details about her health and the delays. Their prompting and timeline is what propelled us to keep pushing for a diagnosis.

We waited a month for the results of the tests, all the while, keeping busy with therapies and adoption legalities. It was during this time that we found out that the same family member that had opposed our adoption would oppose this adoption effort again, even though there had been no word from this person for almost a year. Our recent efforts to have dialog with this person went unacknowledged again. It was heart breaking and yet not a huge surprise. We had prayed for peace for this person and a healthy relationship, but we were coming to grips that this would not be the case.

A new hearing was set and all of a sudden our esteemed attorney, the best, was telling us she would not attend herself; she was going to send the next qualified attorney. I was not happy. All of a sudden we were getting emails that things were not expected to go well in court and we should anticipate a longer, drawn out process filled with depositions and evidence hearings and … I was sick. I didn’t know how to deal with this news. I took this news to my prayer warriors, the same ladies that had been with me the moment I heard “adoption” and had prayed numerous times before. It was in my venting to these prayer warriors, that one of these ladies spoke up. She asked me to repeat the attorney’s name. She smiled. “That is my college roommate and good friend. I will make a call,” she said.

It has been like this every step, right! He has eagerly answered our prayers. God is so good. I didn’t have a magic ball to see the future. But I knew God had brought us this far and I would continue to follow where He leads. And it helped to have friends that would remind me of this and help me turn my tears and fears into faith and hope.IMG_9250

 

By Market America WebCenters May 4, 2023
My name is Amy. I have a daughter! For the longest time, I didn’t think I would ever say those words. And I had reconciled that notion. I had three perfect, healthy, wild, adorable boys. And then my tubes tied! Right, I mean I wasn’t going for a basketball team. And even if I was okay with that, my body seemed to reject recovering from any more after the three cesarean births and subsequent infections. But then something amazing happened, God spoke to my family. He spoke straight to our hearts and then gently awoke us to promises and hopes only He could provide in His perfect timing. Some days it felt like he was jumping up and down, waving his hands, saying “look what you can do…with me” and performing modern-day miracles– until we couldn’t deny the longing and call for our lives. And we are sooooo grateful. I am so very thankful. I want to share her story, because it is beautiful.  Because I feel so blessed to be chosen by God and I know that God calls us all in different ways. I hope you will not only be blessed to know more about the adoption that changed our life, but you will be encouraged to discover the message that brings Joy for you.
By Market America WebCenters October 18, 2016
Xtreme Science mode is happening! One of my scientific advisors and good friends, Dr. Leylah Zeek, is attending the NORD conference in DC with me right now. NORD is the National Organization for Rare Disorders. This meeting is the Breakthrough Summit on Orphan Products for Rare Diseases. There are nearly 600 attendees representing patient advocacy […]
By Market America WebCenters August 13, 2016
CELEBRITY! So many people have called me a celebrity lately thanks to the local news piece that covered our story of rare chromosome disorder diagnosis. It got me thinking. And laughing out loud. Celebrity. That is the last thing I ever dreamed of. And especially not for this reason–a child with great need. Now I […]
By Market America WebCenters June 10, 2016
I am turning 40 this month and I have been reflecting on my life. I don’t think it is coincidence that I feel a stronger sense of purpose this year, with the start of Xtraordinary Joy foundation.  Forty is a number that is used many times throughout the bible to signify a period of time, like […]
By Market America WebCenters May 23, 2016
I am excited to write that this journey we have been on is beginning the next phase. I feel like we have run the adoption marathon and now are beginning an Ironman in Combatting rare  chromosome disorder. We know there are going to be blisters along the way but the prize is worth it. We […]
By Market America WebCenters April 22, 2016
I started getting visions of something before Moriah was born. I never understood them clearly but after her diagnosis, I began getting them again. I began seeing something big happening. I spent a lot of time telling God no. I didn’t understand the vision or why me. I didn’t feel equipped to do things I […]
By Market America WebCenters April 12, 2016
What if the questions that keep driving me for answers are not out of angst and worry but out of PURPOSE and JOY...My eyes are open- I know that it is well, it is well.
By Market America WebCenters February 7, 2016
A month after our courtroom victory, there had been no appeal. We seemed to be in the clear. It felt good to breathe. That stress had been removed. But it was settling in that Moriah had some big challenges. Her physical therapy was progressing well. She was doing exercises to strengthen her muscles. And she […]
By Market America WebCenters January 18, 2016
Justice is something I had to learn about in context of how God sees Justice. And trust was something I was learning to reserve for God and not man. I was desperate for His righteousness to prevail. I knew an injustice had been served to us by a judge that had felt injustice done to […]
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